I performed at The Moth Grandslam to an audience of 500. It went all right. I felt the kind of exhaustion where your individual bones are tired. Here is a photo of me on stage, reaching out to hug a ghost, apparently.
Some days it’s obvious I’m sick, even to look at me. Mostly I look fine though, while experiencing kaleidoscopic variations of symptoms that can change hourly. Your health can be an incomprehensible grab bag of crap, it turns out.
Some days I feel fine. I usually get one of these days every two weeks or so, though it’s never predictable. I can’t say, ‘Well, last Thursday I felt good, so next Thursday should be fine to book tickets for that thing I’m really keen to see.’ Never book tickets is rule #1, because next Thursday is going to be a miserable day. Or not! No-one knows.
Some days I feel so good, I start to think I must be getting better. This is how I felt last week on the Sunshine Coast. I had multiple days in a row where I felt pretty great, which I’d forgotten was possible.
But I can never just enjoy something. My brain is hardwired for imposter syndrome, that fun condition where you doubt your accomplishments and fret about being exposed as a fraud. Sometimes when I feel good, my brain applies imposter syndrome to my illness, and tries to convince me I was never really sick, I was just being lazy and weak. How could I be as sick as I claim, when I feel so good right now? This has heightened since I learned that Munchausen by Internet is a thing. Munchausen syndrome sufferers feign illness for attention, and now they can do that fairly easily online, posting about imaginary symptoms. So maybe I’ve been faking it all along!
That’s what I was thinking while feeling great on vacation. So great, in fact, that I decided to walk up two flights of stairs. The first flight of stairs winded me pretty badly, but for some reason I didn’t take this as a warning sign. The second flight of stairs pretty much destroyed me. My lungs decided they no longer functioned, my whole body started to ache, and I had to stop and put my head on a bannister for a while.
To recap: I’d been feeling fine, walked up approximately 60 stairs, and spent the rest of the day feeling like I’d been trampled by a zebra. It was a relief, frankly, to have such a stark reminder that despite feeling well, I’m actually still stupidly sick.
Of course I felt well on the coast. I wasn’t cooking meals or running errands or doing laundry or chores or catching buses. All I did was walk along the beach and read, and sit in companionable quiet with Steve. Check out how flat this beach is! That’s some smooth walking.
The occasional lack of symptoms doesn’t mean I’m well, which is frustrating. If I feel fine for a day, I want to work full time and exercise and return to my actual life. But as soon as I try to do something a healthy mid-30s person would do, like walk up a few stairs, I’m reminded of why I need to spend month after month sitting around, not doing much of anything, letting life pass by.