When she was diagnosed with Ménière’s disease at age 25, one of the many things it meant for Heather was that she’d have to quit skydiving – though not until she’d injured herself trying to hold on the person she was before.
Heather Taylor Johnson is a writer and editor. Born in Minnesota and now living in South Australia, she has written novels and poetry collections, and is the editor of Shaping the Fractured Self: Poetry of Chronic Illness and Pain. Her writing has been published in Meanjin, Southerly, Cordite, Westerly, Griffith Review, Island and TEXT. She lives with Ménière’s disease, a disorder of the inner ear.
In episode 41 of James and Ashley Stay at Home, she discusses how more than two decades of living with chronic illness have inspired her writing and led to the anthology Shaping the Fractured Self: Poetry of Illness and Chronic Pain.
She also shares Van Gogh’s misdiagnosis with her condition, describes how a year of studying art has changed her writing process, and tells us about her latest book, Rhymes with Hyenas.
Books and authors discussed in this episode
– Beauty is a Verb: The New Poetry of Disability by Jennifer Bartlett (ed)
– Prosopagnosia by Sonia Hernandez
– No Rules Rules: Netflix and the Culture of Reinvention by Reed Hastings and Erin Meyer