In episode 37 of James and Ashley Stay at Home, we speak to two neurodiverse authors about receiving diagnoses as adults, oversharing, figuring themselves out through their writing, and so much more.
Anna Whateley is an #OwnVoices author and proudly autistic, with ADHD and sensory processing disorder. Her debut novel, Peta Lyre’s Rating Normal, is about 16-year-old neurodivergent Peta Lyre, who is the success story of social training until she finds herself on a school ski trip – and falling in love with the new girl. Her next novel, Tearing Myself Together will be released early 2022 with Allen & Unwin. She lives in Brisbane.
Kay Kerr is a freelance writer and YA author from the Sunshine Coast, Australia. She was writing her debut novel Please Don’t Hug Me when she was diagnosed with autism, and she is passionate about autism and wider disability representation in YA fiction. Her second novel Social Queue is a romantic coming-of-age story featuring an autistic teenage girl, and it’s coming out in October 2021.
Their humourous and recommendation-filled newsletter, The Overshare, features seven sections: Listen Up–for all things auditory and musical All The Feels–for sensory gadgets and neurodivergent products we are loving Off The Shelf–bookish things including what we are reading and upcoming events Uh Oh–life disasters, bloopers and social mistakes Leaving The House–pretty self explanatory Who Put Me In Charge–challenges in parenting, executive functioning, and life admin Scratch Pad–to share new writing bits and pieces.
Books and authors discussed in this episode: – Late Bloomer by Clem Bastow; – The Boy from the Mish by Gary Lonesborough; – Henry Hamlet’s Heart by Rhiannon Wilde; – Future Girl by Asphyxia; – When We Were Orphans by Kazuo Ishiguro; – The Remains of the Day by Kazuo Ishiguro; – Never Let Me Go by Kazuo Ishiguro; – Vodka and Apple Juice by Jay Martin; – A History of My Brief History by Billy Ray Belcourt; – The Argonauts by Maggie Nelson
Joanna Nell worked as a GP until a 10-pin bowling accident led to her becoming a bestselling author.
Now, she jokes that she works part-time as a GP and full-time as a writer. Her novels feature ‘young-at-heart characters who are not afraid to break the rules and defy society’s expectations of ageing’.
Joanna is a Sydney-based writer, GP and advocate for positive ageing. Her bestselling debut novel The Single Ladies of Jacaranda Retirement Village was published in 2018 with rights sold internationally. Her second novel The Last Voyage of Mrs Henry Parker was published in 2019.
Her latest novel is The Great Escape From Woodlands Nursing Home, which James describes as full of warmth, humour and charm.
Books and authors discussed in this episode – Providing Good Care at Night for Older People by Diana Kerr and Heather Wilkinson; – The Ripping Tree by Nikki Gemmell; – On Quiet by Nikki Gemmell; – Beautiful Kate by Newton Thornburg; – Far from the Tree by Andrew Solomon
When RWR (Rob) McDonald was writing his award-winning debut novel The Nancys, he was working full time in a high-stress job, studying a master’s degree, and was also a dad to two young girls.
Around the time he got a literary agent, he decided to take a step down, career-wise, into a lower-stress role. Which seemed like a great decision for his health and sanity.
But then he ended up with shingles, and a serious chest infection.
Rob is an award-winning author, a Kiwi and Queer dad living in Melbourne with his two daughters and one HarryCat. His debut novel, The Nancys, won Best First Novel in the 2020 Ngaio Marsh Awards, and was a finalist in the Best Novel category. It was shortlisted for Best First Novel in the 2020 Ned Kelly Awards, and Highly Commended for an Unpublished Manuscript in the 2017 Victorian Premier’s Literary Awards. Nancy Business is his second novel.
Books and authors discussed in this episode: – Harold Robbins (contact Rob for title recommendations); – The Nancy Drew series by Carolyn Keene; – Girl, 11 by Amy Suiter Clarke; – The Silent Listener by Lyn Yeowart; – Entangled Life by Merlin Sheldrake; – Goat Mountain by David Vann (who we interviewed in episode 23)
Launched in 2017, the Penguin Literary Prize was established to find, nurture and develop new Australian authors of literary fiction.
I’ve read a draft of Denzien and loved it, and I can’t wait for it to be out in the world next year. In the meantime, I thought I’d ask James to introduce the book. And then while I was at it, I asked a bunch of other questions.
Ashley: What is Denizen about? James: Denizen is an Australian gothic/literary thriller that explores rural Australia’s simultaneous celebration of harsh country and stoic people – a tension that forces its inhabitants to dangerous breaking points. In it, a volatile eight-year-old in Western NSW struggles to subdue the chaos in his head, unaware of how profoundly his actions will one day affect his own fatherhood.
A:When did you start writing it? Do you remember the day you started? J: Like many of my early manuscripts, Denizen had its origins in a home movie. As an adolescent, one of my creative outlets was short (and far too long) film – a lot of which were feature-length epics whose production and post-production scales go a long way to explaining why my year ten attendance rate was 40 per cent. My earliest ideas for Denizen were that it would be based loosely on a 90-minute film I made when I was 15, called The Creek.
In 2015, when I was 23, I woke up one day to find that I couldn’t feel my feet. Soon after, I was in Royal North Shore Hospital being treated for Guillain Barre Syndrome, a progressive neuropathy that causes rapid paralysis. Part of the work up to diagnose GBS is a lumbar puncture, after which I had to lay flat on my back for two hours. I distinctly remember being rolled onto my back, staring at the ceiling and thinking, “well, now seems as good a time as any to start planning this novel.” I spent the next two hours working it through in my head until I had a clear idea of what the book I would look like. I started the first draft almost as soon as I was discharged from hospital.
In the five years and six drafts since then, Denizen has evolved from being a recognisable adaptation of The Creek into something very different. That said, evidence of its origins remains, particularly in the middle act.
A: What was the most difficult part of writing Denizen? J: I struggled a lot with characterisation, which I suppose is an expected challenge when writing from the point of view of a deeply flawed protagonist. It took a lot of work to make Parker, the main character and narrator, someone readers could empathise with. In the end, realised it was more important to make him relatable than likable, and so I focused on that.
A: One year into James and Ashley Stay at Home, what’s the best episode for listeners to start with? J: I’m very biased, but whenever anyone asks me this question, I tell them episode 23. In it, Ashley and I interviewed David Vann, one of my all-time favourite authors and literary heroes. The conversation was everything I’d hoped it would be – a raw and fascinating exploration of his motivations and process, peppered with his insights into literature, philosophy and politics.
A: What’s your favourite Australian animal? J: The Australian magpie. They’re only bastards if they’re nesting and you’re in their space, and even then, they’re just protecting their babies. They’re gorgeous. They have such a beautiful song. Have you ever seen a magpie sun itself? They lie on their bellies with their wings outstretched – it’s hysterical. And they play like dogs do! They lie on their backs and wrestle with each other. Young magpies look so ridiculous and adorable with their fluffy grey baby feathers, and their weird, spherical bodies. They’re incredibly clever and resourceful. They’re a lot more than just that vicious, swooping bird that takes people’s eyes out. I’d probably swoop at you if you rode a bike through my house too.
Yumiko Kadota was a junior doctor and working hard towards her goal of becoming a plastic surgeon in NSW. But the demands of her workplace became increasingly extreme, and she found herself dealing with bullying, sexism and racism, as well as unreasonable hours. If anyone should know how important sleep is for the body, it should be health care professionals (and the people who manage their rosters). Right?
Instead of sleeping, Yumiko was working longer and longer hours, and was constantly on call. Her health started to deteriorate.
By the time she left her job, she was so unwell that she ended up back in hospital – as a patient.
She recounts her journey from ambitious student to junior doctor to patient suffering burnout and depression in her new memoir, Emotional Female.
‘It’s really important to me, as a writer, to get under the skin of my characters.’ In her new novel, Love Objects, Emily Maguire does exactly that, exploring one woman’s experience with hoarding disorder as a way to better understand our relationships with objects – and with each other.
Emily is the author of six novels, including the Stella Prize and Miles Franklin Award-shortlisted An Isolated Incident, and three non-fiction books. Her articles and essays on sex, feminism, culture and literature have been published widely including in the Sydney Morning Herald, the Australian, the Observer and the Age. Emily works as a teacher and as a mentor to young and emerging writers and was the 2018/2019 Writer-in-Residence at the Charles Perkins Centre at the University of Sydney.
In episode 27 of James and Ashley Stay at Home, we talk to Emily about her interest in hoarding disorder, our relationships to material possessions, and why it’s often so difficult to talk about what causes us pain.
She also draws on her experience as the longtime teacher of Writing NSW’s Year of the Novel course and shares her key advice for writers.
In Friends & Dark Shapes, author Kavita Bedford uses the term sea-creature days, ‘Days when things that lurk beneath the surface start to come up and feel a little stronger in day-to-day life than they normally do.’ We’ve all had days like that.
A Sydney local, Kavita crafted the story as a love letter to her hometown. Its series of textured, lyrical vignettes centre around an unnamed protagonist, her share-house friends, and the lives of others they encounter across a complex, multicultural city where it’s easy to meet people but hard to make lasting connections. Grieving the loss of her father, the protagonist tries to shape her future in her city, while also tracing how it has shaped her.
Kavita drew on her own experiences of her father’s death in writing the novel, as well as her own experiences of Sydney. She was surprised by the complexity of grief. ‘Grief is such a slippery, tricky thing, and you do have moment of lightness within it.’
She was also surprised by the process of writing about Sydney. ‘When I started writing about my own city, there was such an initial outpouring of emotion that I wasn’t expecting.’
The resulting book is a powerful exploration both of grief, and of a metropolitan, multicultural city in transition.
Books and authors discussed in this episode – Sidewalks by Valeria Luiselli – Teju Cole – Olivia Lang – Sheila Heti – Rachel Cusk – Jenny Offill – Elizabeth Strout – Disoriental by Négar Djavadi – The Copenhagen Trilogy by Tove Ditlevsen – Far From the Tree by Andrew Solomon – Deepfakes by Nina Schick
“I was pretty well bedridden, unable to move very easily for about the first year … I’d sort of have to shallow breathe into the tops of my lungs.”
When Josephine Taylor first began to experience chronic pain, she started to reduce her commitments. She was a career woman and a mum. But gradually, she had to shut down her whole life. Meanwhile, she struggled to get a diagnosis.
Eventually the doctors concluded she had vulvodynia, chronic vulva pain lasting three months or longer that is medically unexplained. “That doesn’t mean it’s not real,” she adds. “It’s a very real medical condition.”
Josephine is a writer and freelance editor who lives on the coast north of Perth, Western Australia. She is Associate Editor at Westerly Magazine and an adjunct senior lecturer in writing. Her debut novel, Eye of a Rook, is drawn in part from her experiences with vulvodynia.
Trapped with condition, she began to learn its history and write about it. “It seemed to me very important that people understand that actually there hasn’t been a great deal of movement forward in understanding or awareness since the 1860s.”
Eye of a Rook is a novel with two narratives, both about women suffering from vulvodynia. One storyline is set in contemporary Perth, and one set in England in the late 1800s. The historical narrative includes shocking details about women’s medicine and treatment at that time, drawn in part from research into “The London Surgical Home for the reception of Gentlewomen and Females of Respectability suffering from Curable Surgical Diseases”, which opened in 1858. Taylor describes the barbaric surgical procedure, called a clitoridectomy, which is proposed in the opening chapter as the solution to one of your main characters’ suffering.
For both women, their illness affects their personality, and robs them of themselves, as well as affecting Alice’s career in Perth. We discuss how vulvodynia affected Josephine’s life, medical victim blaming, the difficulty of being diagnosed with a little-understood condition and the ongoing confusion of it, and the ‘finitude of possibility’ that chronic illness inflicts on a life.
Josephine is full of excellent advice and reassurance for anyone suffering chronic and/or invisible illnesses, about surrounding ourselves with people who believe us, and not letting our past dictate our futures.
This episode’s book chat The Fifth Season by Philip Salem Wintering by Krissy Kneen ‘The Wife’s Story’ by Ursula K LeGuin Imperfect by Lee Kofman (who we spoke to in episode 3) Unlike the Heart by Nicola Redhouse Pain and Prejudice by Gabrielle Jackson Show Me Where It Hurts by Kylie Maslen Hysteria by Katerina Bryant One Day I’ll Remember This: Diaries 1987-1995 by Helen Garner In the Woods by Tana French
“What I would ultimately like, you know, my huge big goal [for the book, is that] people can look back on this and say, ‘You know, there are bits in that – as a non-Indigenous person – I didn’t understand, but that’s okay, and I don’t need to acquire and learn and make meaning for everything in that book,’ because sometimes parts of that book are for Aboriginal people, some parts are for Yuwaalaraay people, and other parts are for Yuwaalaraay senior people.”
Our first guest for 2021 is Yuwaalaraay author Nardi Simpson. From North West NSW freshwater plains, Nardi is a founding member of Indigenous folk duo Stiff Gins, and has been performing nationally and internationally for 20 years. Her debut novel, Song of the Crocodile, was a 2018 winner of a black&write! writing fellowship.
Speaking to us from a beach on the Northern Rivers, Nardi delved into the intercultural aspects of the book, and of navigating modern society as an Indigenous person in Australia.
Song of the Crocodile is set in the fictional town of Darnmoor, in regional NSW. The story spans four generations of the Billymil family and their effort to sustain their Indigenous culture and community despite the overt and covert racism of the settlers, and the corrosive impact of intergenerational trauma.
Filled with ancestral spirits and Yuwaalaraay language, it presents both an insight into an ancient worldview that understands the healing power of the natural world, and a sharp, affecting critique of Australian society.
Her book reminded me of my own research into my family members’ survival of the Armenian genocide and the process of weaving that research into fiction when writing My Name Is Revenge.
“What happened to those families is basically what happened to my family,” Nardi says. “I wanted to understand that, and I didn’t want to judge it.”
Going too much into detail on the connections would be a spoiler for both Nardi’s book and my own, but one of the broad strokes points we both explore is how much has been lost due to the violence suffered by both communities – not just lives, livelihoods, homes and land, but also cultural knowledge and worldviews.
It’s a great conversation, and Nardi is a fascinating speaker and well as a powerful writer.
In this episode, we also discuss Bindi by Kirli Saunders, The Road to Woop Woop by Eugen Bacon, and James’s thoughts on reaching the end of Karl Ove Knausgaard’s six-book memoir series.