Tag: CFS

  • Life: Cancelled

    I’ve been really sick. It’s not COVID, just a bad stretch of my normal chronic fatigue. Usually I try to find the humour in things. I use humour to cope with life. But over the past few years, life seems to be working hard to beat the humour out of me. I started doing stand-up […]

  • The Lost Hours Project

    This is my fourth year with chronic fatigue syndrome. I’m so much better than I was, and I’m still so far away from reliably good health. Because CFS is an invisible illness, and because I sometimes post pictures of myself out doing things, it’s understandably hard to reconcile how sick I still am with the […]

  • Hollywood’s great kookaburra con

    24 May 2018 [journal excerpts] In the latest Jurassic Park, in the first establishing shot of the jungle, there’s the sound of a kookaburra call. We’re supposed to think it’s monkeys. I’ve noticed this in other US films as well. So I finally looked it up online and yes, this a Hollywood trope, the kookaburra call […]

  • But have you tried eating mummified flesh?

    One of the recovery strategies the doctors gave me for chronic fatigue was tracking my step count as a proxy for the amount of physical activity I can do in a day. “It’s not exact,” one of the doctors said. “You could spend a day on a stool painting a wall, and obviously your steps […]

  • Thefting by finding

    When I was 14, my aunt gave me a purple journal with Garfield on the cover (the cat, not the president). This indicates how cool I was at 14. Having barely any friends gave me heaps of time to write in my journal. I’ve kept up that habit for more than two decades. I sometimes […]

  • Like floating in space, but wet

    My doctors advised me to manage my chronic fatigue recovery by taking frequent rests throughout the day. This is fine if I’m home, where there’s no people buzzing around, where I can put on my eye mask and if necessary, noise-cancelling headphones. When I’m not home, it’s harder to actually rest. And sometimes it’s not possible to […]

  • Launched!

    We launched My Name Is Revenge on April 10. The crowd was amazing, and the signing line-up lasted for practically the entire event. My husband Steve was MC, and he introduced the guest of honour, author Emily Maguire. In Emily’s speech, she described the first time she learned about the Armenian genocide, about ten years […]

  • A weird silver lining in the chronic illness clouds

    Since I started posting charts tracking my chronic fatigue recovery, I know you’ve been desperately waiting for the next update. Every post is like a cliffhanger season finale. There’s been a lot happening lately. And I was doing well. Check out my step count, especially that excellent stretch from mid-January to mid-March. No crashes at […]

  • Quantifiable excitement

    I don’t know about you, but my 2019 started pretty rough. I  can show you exactly how rough, thanks to my daily step count (part of my chronic fatigue recovery process). You can see that extreme crash on January 7, a day I could barely get upright. And then a few semi-functional days, followed by […]