The relative shape of a human

When I first met up with Monica Michelle via Zoom and asked how she was, she replied “A relative shape of a human.”

I recognised the feeling.

Monica hosts Explicitly Sick, one of the podcasts from the Invisible Not Broken network. She lives with Ehlers Danlos Type 3, fibromyalgia and POTS, and after having to give up a career in photography, she now interviews writers, creators and artists with chronic illness.

Ehlers Danlos syndrome is one of many conditions I hadn’t heard of before I struck by chronic illness myself and discovered a community of millions of people living with a wide range of conditions that prevent them from fully participating in their own lives. Ehlers Danlos is actually a group of related connective tissue disorders that result in pain and fatigue, among a complex variety of other issues.

She started her podcast in part to “help others be kinder and more gentle with each other.”

Even while she’s coping with physical pain, Monica is a delight to speak to. In this conversation, we discuss:
– chronic fatigue syndrome and my experience with insidious onset
– the impact of illness on personal relationships
– marriage counselling
– the challenge of asking for help
– writing about illness
– Fiona Wright’s The World Was Whole
– what progress means when you’re sick
the secret to fighting project inertia in creative projects

You can watch the full interview here.

Wishing you your full humanness,
Ashley
xo