Tag: PIFS

  • The relative shape of a human

    When I first met up with Monica Michelle via Zoom and asked how she was, she replied “A relative shape of a human.” I recognised the feeling. Monica hosts Explicitly Sick, one of the podcasts from the Invisible Not Broken network. She lives with Ehlers Danlos Type 3, fibromyalgia and POTS, and after having to […]

  • New Year’s resolutions for 2021

    If 2020 taught us anything, it’s that there’s no point making plans. I planned all kinds of things last year, including that I would be in Canada over this holiday season to finally visit my family after four years of CFS making the journey impossible. Instead I’ve spent three damp and soggy holiday weeks in […]

  • Podcast: James and Ashley Stay at Home

    Podcast: James and Ashley Stay at Home

    Listen on Apple podcasts | Spotify | Stitcheror your favourite podcast app James and Ashley are staying at home. Partly because there’s a pandemic, partly because they’re writers, and partly because of their health. Through discussions and interviews with other writers and creatives, they’ll explore how staying at home has its benefits.James and Ashley Stay at […]

  • Life: Cancelled

    I’ve been really sick. It’s not COVID, just a bad stretch of my normal chronic fatigue. Usually I try to find the humour in things. I use humour to cope with life. But over the past few years, life seems to be working hard to beat the humour out of me. I started doing stand-up […]

  • The Lost Hours Project

    This is my fourth year with chronic fatigue syndrome. I’m so much better than I was, and I’m still so far away from reliably good health. Because CFS is an invisible illness, and because I sometimes post pictures of myself out doing things, it’s understandably hard to reconcile how sick I still am with the […]

  • 2020 resolutions I might actually stick to

    Last year I shared a bunch of resolutions I intended to utterly fail at – and that felt great. Failure is a part of trying, and dealing with chronic fatigue makes me that much more likely to fail, since my daily health is so unpredictable. Acknowledging that I’d probably fail at most goals I set in […]

  • Hollywood’s great kookaburra con

    24 May 2018 [journal excerpts] In the latest Jurassic Park, in the first establishing shot of the jungle, there’s the sound of a kookaburra call. We’re supposed to think it’s monkeys. I’ve noticed this in other US films as well. So I finally looked it up online and yes, this a Hollywood trope, the kookaburra call […]

  • Like floating in space, but wet

    My doctors advised me to manage my chronic fatigue recovery by taking frequent rests throughout the day. This is fine if I’m home, where there’s no people buzzing around, where I can put on my eye mask and if necessary, noise-cancelling headphones. When I’m not home, it’s harder to actually rest. And sometimes it’s not possible to […]

  • So now you’re an author

    When I was seven, my school published a story I’d written in a collection called Young Saskatchewan Writers. (My family lived in Moose Jaw, so I was Saskatchewanian.) It was a one-paragraph story about a wizard who turned some school kids into frogs. Seeing my name in that book made me think I actually was […]