Tag: post-infective fatigue syndrome

  • The relative shape of a human

    When I first met up with Monica Michelle via Zoom and asked how she was, she replied “A relative shape of a human.” I recognised the feeling. Monica hosts Explicitly Sick, one of the podcasts from the Invisible Not Broken network. She lives with Ehlers Danlos Type 3, fibromyalgia and POTS, and after having to […]

  • New Year’s resolutions for 2021

    If 2020 taught us anything, it’s that there’s no point making plans. I planned all kinds of things last year, including that I would be in Canada over this holiday season to finally visit my family after four years of CFS making the journey impossible. Instead I’ve spent three damp and soggy holiday weeks in […]

  • Ep 9: The healing power of creativity

    When we invited Karin Foxwell on James and Ashley Stay at Home, she said, ‘my work as an art therapist is the best job in the world.’ Art therapy is a creative form of counselling, as Karin describes. Her work focuses on military and emergency service personnel who live with PTSD as an after-effect of trauma […]

  • Falling victim to medical gaslighting

    Since getting diagnosed with chronic fatigue syndrome in 2017, one of the most helpful things has been learning specific terms that describe aspects of the illness. I think this is partly because the existence of a given term is proof I’m not imagining what I’m experiencing. It’s real, and other people have experienced it – […]

  • Podcast: James and Ashley Stay at Home

    Podcast: James and Ashley Stay at Home

    Listen on Apple podcasts | Spotify | Stitcheror your favourite podcast app James and Ashley are staying at home. Partly because there’s a pandemic, partly because they’re writers, and partly because of their health. Through discussions and interviews with other writers and creatives, they’ll explore how staying at home has its benefits.James and Ashley Stay at […]

  • Life: Cancelled

    I’ve been really sick. It’s not COVID, just a bad stretch of my normal chronic fatigue. Usually I try to find the humour in things. I use humour to cope with life. But over the past few years, life seems to be working hard to beat the humour out of me. I started doing stand-up […]

  • The Lost Hours Project

    This is my fourth year with chronic fatigue syndrome. I’m so much better than I was, and I’m still so far away from reliably good health. Because CFS is an invisible illness, and because I sometimes post pictures of myself out doing things, it’s understandably hard to reconcile how sick I still am with the […]

  • 2020 resolutions I might actually stick to

    Last year I shared a bunch of resolutions I intended to utterly fail at – and that felt great. Failure is a part of trying, and dealing with chronic fatigue makes me that much more likely to fail, since my daily health is so unpredictable. Acknowledging that I’d probably fail at most goals I set in […]

  • Resolutions I sincerely plan to achieve in 2020

    I started last year with a pack of lies. I told you that, because of my chronic fatigue, I wasn’t going to set any genuine new year’s resolutions. Instead, I made a list of absurd resolutions that I intended to fail at –climbing Mt Everest in a Pikachu onesie, catching a serial killer, and growing […]