Tag: spoonie

  • Ep 63 How not to write a memoir with author Bronwyn Birdsall

    Ep 63 How not to write a memoir with author Bronwyn Birdsall

    After contracting glandular fever as a child (aka mono), Bronwyn Birdsall ended up with such bad chronic fatigue, she missed six months of school. This was at a time when there was still significant stigma surrounding the illness. Bronwyn grew up in Sydney. At age 24, she moved to Sarajevo, Bosnia and Herzegovina, and worked […]

  • And the 2021 Penguin Literary Prize goes to …

    Huge congratulations are due to my podcast co-host, writers’ group member and fellow health-challenged friend, James McKenzie Watson, who has won the won the 2021 Penguin Literary Prize for his manuscript Denizen. Launched in 2017, the Penguin Literary Prize was established to find, nurture and develop new Australian authors of literary fiction. I’ve read a […]

  • The relative shape of a human

    When I first met up with Monica Michelle via Zoom and asked how she was, she replied “A relative shape of a human.” I recognised the feeling. Monica hosts Explicitly Sick, one of the podcasts from the Invisible Not Broken network. She lives with Ehlers Danlos Type 3, fibromyalgia and POTS, and after having to […]

  • New Year’s resolutions for 2021

    If 2020 taught us anything, it’s that there’s no point making plans. I planned all kinds of things last year, including that I would be in Canada over this holiday season to finally visit my family after four years of CFS making the journey impossible. Instead I’ve spent three damp and soggy holiday weeks in […]

  • Ep 10: Progressive weakness and loss of sensation

    In episode 10 of James and Ashley Stay at Home, we get real serious – or as serious as it’s possible for James and me to get. We talk about our respective diagnoses and how these illnesses erupted in our lives. James has chronic inflammatory demyelinating polyneuropathy, a neurological disorder that’s quite rare. CIDP has […]

  • Podcast: James and Ashley Stay at Home

    Podcast: James and Ashley Stay at Home

    Listen on Apple podcasts | Spotify | Stitcheror your favourite podcast app James and Ashley are staying at home. Partly because there’s a pandemic, partly because they’re writers, and partly because of their health. Through discussions and interviews with other writers and creatives, they’ll explore how staying at home has its benefits.James and Ashley Stay at […]

  • Podcasts to see you through

    As you know, giant sea monsters have attacked our cities. While it’s not clear how many people they’re eating, it is clear that the safest thing to do is stay inside.  While you’re inside for the foreseeable future, you might as well listen to some high quality podcasts. Lately I’ve been trying lots of new […]

  • The Lost Hours Project

    This is my fourth year with chronic fatigue syndrome. I’m so much better than I was, and I’m still so far away from reliably good health. Because CFS is an invisible illness, and because I sometimes post pictures of myself out doing things, it’s understandably hard to reconcile how sick I still am with the […]

  • Resolutions I sincerely plan to achieve in 2020

    I started last year with a pack of lies. I told you that, because of my chronic fatigue, I wasn’t going to set any genuine new year’s resolutions. Instead, I made a list of absurd resolutions that I intended to fail at –climbing Mt Everest in a Pikachu onesie, catching a serial killer, and growing […]