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The Lost Hours Project
This is my fourth year with chronic fatigue syndrome. I’m so much better than I was, and I’m still so far away from reliably good health. Because CFS is an invisible illness, and because I sometimes post pictures of myself out doing things, it’s understandably hard to reconcile how sick I still am with the […]
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Resolutions I sincerely plan to achieve in 2020
I started last year with a pack of lies. I told you that, because of my chronic fatigue, I wasn’t going to set any genuine new year’s resolutions. Instead, I made a list of absurd resolutions that I intended to fail at –climbing Mt Everest in a Pikachu onesie, catching a serial killer, and growing […]
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Hollywood’s great kookaburra con
24 May 2018 [journal excerpts] In the latest Jurassic Park, in the first establishing shot of the jungle, there’s the sound of a kookaburra call. We’re supposed to think it’s monkeys. I’ve noticed this in other US films as well. So I finally looked it up online and yes, this a Hollywood trope, the kookaburra call […]
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But have you tried eating mummified flesh?
One of the recovery strategies the doctors gave me for chronic fatigue was tracking my step count as a proxy for the amount of physical activity I can do in a day. “It’s not exact,” one of the doctors said. “You could spend a day on a stool painting a wall, and obviously your steps […]
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Thefting by finding
When I was 14, my aunt gave me a purple journal with Garfield on the cover (the cat, not the president). This indicates how cool I was at 14. Having barely any friends gave me heaps of time to write in my journal. I’ve kept up that habit for more than two decades. I sometimes […]
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Ten (more) best podcasts
Last year I recommended ten podcasts I love. This year I’m still spending a ludicrous amount of time lying down, which means I’m still listening to a lot of podcasts. Chronic fatigue has basically turned me into a podcast curation service. Here’s ten more I’m sure you’ll enjoy. The Shrink Next Door This six-episode series […]
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Like floating in space, but wet
My doctors advised me to manage my chronic fatigue recovery by taking frequent rests throughout the day. This is fine if I’m home, where there’s no people buzzing around, where I can put on my eye mask and if necessary, noise-cancelling headphones. When I’m not home, it’s harder to actually rest. And sometimes it’s not possible to […]